In view of the stigma attached to this disease in India, the dementia cases are pushed under the carpet and untold suffering within the family is the result. Attributing the symptoms to old age, early detection and systematic care are often neglected. Through public education, we create awareness that dementia is only a disease that can happen to anybody and early detection and proper care could make an improvement in the lives of the patients. This programme includes interpersonal contacts, group meetings in senior citizen organizations/forums, old age homes, and educational institutions.
Elders are screened for symptoms and potential risks of developing dementia. A team of experts conducts camps on request anywhere in Bangalore for a group and for individuals. This facility is available at our centers as well as online self assessment can be used.
This is mainly done through Helpline or on personal appointment at Sandhya Kirana. Family members need to be educated about the nature of the disease process and the various aspects of caregiving. A lot of tips on do's and don'ts while handling a dementia patients are also discussed. There are two dementia Helplines which currently are operational between 9 am and 9 pm on all the days of the year to provide information on care, counseling, and available support systems. The numbers are 9379792906 / 9379830631
There is no certain cure or cause known for dementia; however, pre-dementia or Mild Cognitive Impairment condition can be detected through screening and assessment by either Neuropsychiatrists, Psychiatrists, or Neurologists. It is also a pre-clinical stage for Alzheimer's Disease. To this account, memory clinic functions at Sandhya Kirana on all Thursdays of the month between 1:30 p.m. and 4:30 pm, except on the last Thursday, when it functions at Nightingales Elders Enrichment Center. Referrals, however, may be made for any medical investigations.
This is a group of family members of people who suffer from dementia and the purpose of this group is to provide support to caregivers and thus allow them to cope better. By knowing that they are not alone, sharing their feelings and experiences, learning about various aspects of caregiving and the actual disease process, helping each other by providing innovative ideas and tips, and above all to care for themselves is encouraged. Currently, the group meets twice, on second Saturdays at Sandhya Kirana.
The most important aspect of caregiving is being able to take a break and find time for one-self. This is achieved by sending the dementia patients to either Sandhya Kirana or Nightingales Elders Enrichment Center. Not only do the caregivers get a break, but a team of trained geriatric nurses take care of patients and engage them in cognitive training, reality orientation, reminiscence, memory training, music therapy, ADL Training, art and craft activities, etc. Timings: Monday to Saturday 8 a.m. to 6 p.m.
Transportation available for patients living within 10 km radius from Sandhya Kirana
In the later part of the disease or due to fall, issues with mobility of the person suffering from dementia crops up and it becomes extremely difficult if not impossible for them to be taken for any sort of check-up. The home visits are made by either a Neuropsychiatrist or a Physiotherapist or a Social Worker depending on the needs of the individual. Memory assessment, education on various aspects of caregiving and fall prevention measures are taught to the caregivers. Request for the home visit can be placed by calling the dementia Helpline.
Caregivers job is very stressful and often leading to what is called as a "caregivers' burnout." An in-depth knowledge of the disease and management strategies for handling challenging behaviours goes a long way in ensuring that the caregiving journey be more pleasant and enjoyable.
Periodic trainings are arranged for caregivers at various levels (professionals to family caregivers). Requests can also be placed for training caregivers at home.
Rehabilitation in dementia perspective would not only point to memory, but to the overall physical, emotional and psychological rehabilitation of the person suffering from dementia. This particular program focuses on the remaining abilities of the person and promotes independence in daily living and improving the quality of life of the person suffering from dementia. The team includes physiotherapist and occupational therapist and request for consultation can be placed through the Helpline.